The Parkinson's Genetic Research Study
Purpose
The Parkinson's Genetic Research Study (PaGeR), headed by Dr. Cyrus Zabetian, is searching for genes that increase the risk of developing Parkinson's disease (PD) and related disorders. The study is a joint effort by neurologists and researchers across the United States and is sponsored by the National Institutes of Health. The coordinating center for PaGeR is located at the University of Washington and the VA Puget Sound Health Care System in Seattle.
Condition
- Parkinson's Disease
Eligibility
- Eligible Ages
- Over 18 Years
- Eligible Sex
- All
- Accepts Healthy Volunteers
- Yes
Inclusion Criteria
- Over 18 years of age - Member of a family in which there are two or more living individuals who have been diagnosed with Parkinson's disease
Exclusion Criteria
- Under 18 years of age
Study Design
- Phase
- Study Type
- Observational
- Observational Model
- Family-Based
- Time Perspective
- Cross-Sectional
Arm Groups
| Arm | Description | Assigned Intervention |
|---|---|---|
| Case | Has a diagnosis of Parkinson's disease | |
| Control | No diagnosis of Parkinson's disease | |
| Family Member | Has a family history of Parkinson's disease. Can be affected or unaffected with Parkinson's disease |
Recruiting Locations
Atlanta, Georgia 30329
Cincinnati, Ohio 45267
Portland, Oregon 97239
Susan O'Connor
503-220-8262
Seattle, Washington 98108
Jennifer Pate
855-646-4221
Seattle, Washington 98118
Jennifer Pate
855-646-4221
More Details
- Status
- Recruiting
- Sponsor
- University of Washington
Study Contact
Jennifer Pate1-855-646-4221
Detailed Description
PaGeR is focusing on families in which two or more people have been diagnosed with PD. Past research suggests that such "multiplex" families might hold the key to the discovery of new PD genes. To take part in PaGeR, participants will be asked to complete a questionnaire and to undergo an interview, a neurological exam, a short memory test, and a blood draw. Enrollment in the study usually takes between one and two hours. There is no cost to participate, and all study information is kept strictly confidential. There are a number of designated sites across the country where families can enroll. However, for family members who are unable to travel to one of these sites, other arrangements can be made.