Bronchiectasis and NTM Research Registry

Purpose

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions.

Conditions

  • Non-CF Bronchiectasis
  • Nontuberculosis Mycobacteria (NTM)

Eligibility

Eligible Ages
Between 18 Years and 120 Years
Eligible Sex
All
Accepts Healthy Volunteers
Yes

Inclusion Criteria

  • Over the age of 18 - non-CF Bronchiectasis - Nontuberculosis Mycobacteria (NTM)

Exclusion Criteria

  • Under the age of 18 - CF Bronchiectasis

Study Design

Phase
Study Type
Observational [Patient Registry]
Observational Model
Cohort
Time Perspective
Prospective

Arm Groups

ArmDescriptionAssigned Intervention
Non-CF Bronchiectasis Patients with or without NTM Patients over the age of 18 with non-CF Bronchiectasis with or without Nontuberculosis Mycobacteria (NTM).
Nontuberculosis Mycobacteria (NTM) Patients over the age of 18 with Nontuberculosis Mycobacteria (NTM)

Recruiting Locations

COPD Foundation
Washington D.C., District of Columbia

More Details

Status
Recruiting
Sponsor
COPD Foundation

Study Contact

Delia Prieto
1-866-731-2673

Detailed Description

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions. The goal of the Bronchiectasis Research Registry is to support collaborative research and assist in the planning of multi-center clinical trials for the treatment of NTM and non-CF Bronchiectasis, a progressive, non-curable disease of the lungs, which afflicts thousands of patients. The Registry will also be used to provide better insight into the study of the different types of Bronchiectasis, as well as the pathophysiology of the disorder. In 2012, in collaboration with NTM Info and Research, Inc (NTMir) and the consortium members, the COPD Foundation expanded the Bronchiectasis Research Registry to enroll patients with "non tuberculous mycobacteria (NTM) only". Prior to this time, the registry included individuals with Bronchiectasis, with or without NTM.