Susan G. Komen's ShareForCures

Purpose

ShareForCures (SFC) is a community-based participatory research registry, and its prime objective is to engage participants representative of the United States breast cancer patient population -including minoritized and historically marginalized people, persons, or communities-to ensure the data researchers use to study breast cancer is as diverse as the people touched by this disease. In doing so, researchers will have a better understanding of breast cancer, and everyone can potentially benefit from scientific advances and improvements in care.

Condition

  • Breast Cancer

Eligibility

Eligible Ages
Over 18 Years
Eligible Sex
All
Accepts Healthy Volunteers
No

Inclusion Criteria

  • Individuals must be at least 18 years old. (Individuals in Alabama and Nebraska must be over 19 and individuals in Mississippi and Pennsylvania must be over 21 to participate). - Individuals must have been diagnosed with cancer originating (or is suspected to originate) from the breast. - Individuals must be currently residing in the United States or a territory of the United States. - Individuals must be able to read and understand English.

Exclusion Criteria

  • Individuals under the age of 18 years. (Individuals in Alabama and Nebraska under 19 and individuals in Mississippi and Pennsylvania under 21 are not eligible to participate). - Individuals without a diagnosis of breast cancer. - Individuals who are not residing in the United States or a territory of the United States. - Individuals unable to read and understand English.

Study Design

Phase
Study Type
Observational [Patient Registry]
Observational Model
Other
Time Perspective
Other

Recruiting Locations

Susan G. Komen
Dallas, Texas 75380
Contact:
Jerome Jourquin, Ph.D., M.S.
1-877-465-6636
JJourquin@komen.org

More Details

Status
Recruiting
Sponsor
Susan G. Komen Breast Cancer Foundation

Study Contact

Jerome Jourquin, Ph.D., M.S.
1-877-465-6636
JJourquin@komen.org

Detailed Description

ShareForCures (SFC) will be a people-powered, data-driven breast cancer registry that will provide a way for individuals from diverse backgrounds to participate in research and enable participants' data to be used for breast cancer research. The overarching goal of SFC is to create a robust research resource comprised of clinical, biological, socio-behavioral, and other data from up to 200,000 people with breast cancer-including minoritized and historically marginalized people, persons, or communities-to ensure the data, researchers use to study breast cancer, is as diverse as the people touched by this disease. In doing so, researchers will have a better understanding of breast cancer and everyone can potentially benefit from scientific advances and improvements in care.