Improving Information Sharing Between Family Caregivers and Home Care Aides

Purpose

This study will assess the feasibility and acceptability of delivering a home care role and preference guide to up to 50 family caregivers and home care aides of persons living with disability for the purpose of identifying roles between family caregivers and home care aides.

Condition

  • Shared Care

Eligibility

Eligible Ages
Over 18 Years
Eligible Sex
All
Accepts Healthy Volunteers
Yes

Inclusion Criteria

  1. Home care agency aide: - English speaking, - home care aides, personal care aides, or personal care aides, providing services to older adults with ADRD. 2. Family or unpaid caregiver eligible for the study if: - 18 years and older - English speaking - hear well enough to communicate by telephone - identify themselves as the primary family member or unpaid (friend/companion) caregiver

Exclusion Criteria

  1. Home care aides are ineligible if: - non-English speaking - certified nursing assistants, nursing assistant, home health aides, or medication technicians. 2. Family/unpaid caregivers ineligible if: - less than 18 years old - non-English speaking - do not hear well enough to communicate by telephone - two or more incorrect answers or not being able to respond to a validated 6-item telephone screening instrument - are not identified as the person's primary caregiver, or are paid for services.

Study Design

Phase
N/A
Study Type
Interventional
Allocation
N/A
Intervention Model
Single Group Assignment
Intervention Model Description
The interventional study model will include a home care role and preference guide to improve information sharing and clarify role expectations between family caregivers and home care aides of older adults with disabilities.
Primary Purpose
Health Services Research
Masking
None (Open Label)

Arm Groups

ArmDescriptionAssigned Intervention
Other
GRACE 		Role and preference guide for family caregivers and home care aides
  • Other: GRACE
    GRACE- Guide for Role Awareness and Care Engagement is a role and preference guide designed to improve information sharing and clarify role expectations between family caregivers and home care aides of older adults. This guide will outline the various domains of providing care services and preferences for older adults such as daily routine and preferred activities. The intervention will be delivered in-person to the family caregiver and home care aide at the care recipient's home.

Recruiting Locations

Johns Hopkins University
Baltimore, Maryland 21205
Contact:
Chanee Fabius, PhD

More Details

Status
Recruiting
Sponsor
Johns Hopkins Bloomberg School of Public Health

Study Contact

Valecia Hanna, MS
4432202389
vhanna1@jhu.edu

Detailed Description

This study will assess the feasibility and acceptability of delivering a home care role and preference guide to family caregivers and home care aides of persons living with disability for the purpose of identifying roles between family caregivers and home care aides, as well as preliminary effects on older adult social engagement, caregiver distress, continuity, and feelings of being overwhelmed, family caregiver/direct care worker preparedness, relational coordination, and service satisfaction. The intervention will involve delivering the home care role and preference guide to up to 50 family caregiver-home care care aide dyads to demonstrate the feasibility of collecting primary endpoints relating to older adults' outcomes to be examined in a future ePCT as well as intervention acceptability. Information about family caregivers and home care aide perspectives will be collected at enrollment, 2- and 4-weeks of the intervention.