Conditions

• Childhood Hematopoietic and Lymphatic System Neoplasm
• Childhood Malignant Solid Neoplasm

Eligibility

Eligible Ages

Over 18 Years

Eligible Sex

All

Accepts Healthy Volunteers

Yes

Criteria

Inclusion Criteria:

- Index Child (COG Registered Patient):

- Must be deceased

- < 18 years old at time of death

- Diagnosed with any oncologic condition

- History of enrollment on Stratum 1 of APEC14B1, Project:EveryChild

- Note: history of treatment on a COG therapeutic trial is not required

- Resided in the United States, including Puerto Rico, as evidenced by most
recent address, at the time of death

Bereaved Parent(s):

- Must be a parent, legal guardian, or caregiver (biological or non-biological) of an
eligible Index Child enrolled on APEC14B1 with current Consent to Future Contact
(e.g., from the APEC14B1 Part B Consent)

- Self-reported confirmation of familiarity with the care received by the Index Child
in the last month of their life

- Bereaved parent must understand English or Spanish (written and/or spoken)

- Must be a parent/guardian/key contact from the Index Child's APEC14B1 Future Contact
study record or must be referred by one of the APEC14B1 contacts

- Bereaved parent must be >= 18 years old at the time of ALTE24C1 study enrollment

Regulatory Requirements:

- Bereaved parent must provide verbal or implied informed consent

- For all participants, all institutional, FDA, and NCI requirements for human studies
must be met

Recruiting Locations

Study Contact

Detailed Description

PRIMARY OBJECTIVE: I. Examine the role of access to care, patient/family healthcare interactions, and stress in variation in quality of end-of-life (EOL) care. OUTLINE: This is an observational study. PART 1: The medical records of deceased patients are reviewed on study. PART 2: Bereaved parents complete a survey and may participate in an interview on study.