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Purpose

The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.

Conditions

Eligibility

Eligible Ages
Over 18 Years
Eligible Sex
All
Accepts Healthy Volunteers
Yes

Inclusion Criteria

  • 18 years or older that says yes to one of the following: - COPD diagnosis - Current or former smoker - Family history of respiratory disease - Symptomatic of respiratory disease

Exclusion Criteria

  • Non-English speaking

Study Design

Phase
Study Type
Observational [Patient Registry]
Observational Model
Cohort
Time Perspective
Other

Recruiting Locations

COPD Foundation
Washington D.C., District of Columbia 20001
Contact:
Gretchen M McCreary, MA
866-731-2673
gmccreary@copdfoundation.org

More Details

Status
Recruiting
Sponsor
COPD Foundation

Study Contact

Gretchen M McCreary, MA
866-731-2673
gmccreary@copdfoundation.org

Notice

Study information shown on this site is derived from ClinicalTrials.gov (a public registry operated by the National Institutes of Health). The listing of studies provided is not certain to be all studies for which you might be eligible. Furthermore, study eligibility requirements can be difficult to understand and may change over time, so it is wise to speak with your medical care provider and individual research study teams when making decisions related to participation.