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Purpose

CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed. The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email catnap@pulseinfoframe.com. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.

Condition

Eligibility

Eligible Ages
Under 17 Years
Eligible Sex
All
Accepts Healthy Volunteers
No

Inclusion Criteria

  • Any child or adolescent with a physician-confirmed diagnosis of narcolepsy - Age less than 18 years - Willing to participate in the Registry and complete the informed consent form - Able to participate in English based registry

Exclusion Criteria

  • Age 18 years or more - Fail to complete the informed consent form

Study Design

Phase
Study Type
Observational [Patient Registry]
Observational Model
Other
Time Perspective
Prospective

Recruiting Locations

University of Arizona
Tucson, Arizona 85719

Arkansas Children's Research Institute
Little Rock, Arkansas 72202

Stanford University
Redwood City, California 94063

University of California San Diego
San Diego, California 92093

University of South Florida
Tampa, Florida 33620

Boston Children's Hospital
Boston, Massachusetts 02115

St. Luke's Hospital
Chesterfield, Missouri 63017

Children's Mercy Hospital
Kansas City, Missouri 64108

Northwell Health
Manhasset, New York 11030

Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio 45229

University Hospitals Cleveland Medical Centre (UHCMC)
Cleveland, Ohio 44106

Ohio Sleep Medicine Institute
Dublin, Ohio 43017

Geisinger
Danville, Pennsylvania 17822

Children's Hospital of Philadelphia
Philadelphia, Pennsylvania 19104

Texas Children's Hospital (Baylor College of Medicine)
Houston, Texas 77030

Children's Hospital of the King's Daughters
Norfolk, Virginia 23507

More Details

Status
Recruiting
Sponsor
Jazz Pharmaceuticals

Study Contact

Director Clinical Trial Disclosure & Transparency
2158709177
ClinicalTrialDisclosure@JazzPharma.com

Notice

Study information shown on this site is derived from ClinicalTrials.gov (a public registry operated by the National Institutes of Health). The listing of studies provided is not certain to be all studies for which you might be eligible. Furthermore, study eligibility requirements can be difficult to understand and may change over time, so it is wise to speak with your medical care provider and individual research study teams when making decisions related to participation.