Print

Purpose

This clinical trial studies the effectiveness of a newly developed survivorship mobile application (app) designed for survivors, or their caregivers, of childhood cancer to help them better navigate long-term follow-up care. The survivorship app provides survivors access to their treatment history and follow-up recommendations, improves knowledge of their diagnosis, treatment, risks, and recommended follow-up care by using a message notification. The ability to quickly connect and establish care planning may enhance adherence to recommended follow-up.

Conditions

Eligibility

Eligible Ages
All ages
Eligible Sex
All
Accepts Healthy Volunteers
Yes

Inclusion Criteria

  • Survivors of childhood cancer attending Survivorship Clinic at University of California, San Francisco (UCSF) OR caregivers of a childhood cancer survivor attending Survivorship Clinic at UCSF. - Must have a mobile device (smartphone or smart-tablet) with service plan. - Must have ability to read, write, and understand English language.

Exclusion Criteria

  • An individual who does not meet any of the criteria mentioned above will be excluded from participation in this study.

Study Design

Phase
N/A
Study Type
Interventional
Allocation
N/A
Intervention Model
Single Group Assignment
Primary Purpose
Health Services Research
Masking
None (Open Label)

Arm Groups

ArmDescriptionAssigned Intervention
Experimental
Survivorship Mobile Application 		Participants are seen in the survivorship clinic and receive education about potential late effects and the survivorship application on study. Participants enrolled in this study will be asked to complete two self-administered questionnaires at 4 time points. Questionnaires will be designed and made available electronically, to be completed on the participant's personal mobile device (e.g., mobile phone).
  • Behavioral: Survivorship mobile application
    Mobile phone application
    Other names:
    • Survivorship App
  • Other: Questionnaires
    Questionnaires assessing cancer knowledge and system usability will be delivered to participants via Survivorship App

Recruiting Locations

University of California, San Francisco
San Francisco, California 94143
Contact:
Patricia Murphy, RN
415-476-2700
Patricia.Murphy@ucsf.edu

More Details

Status
Recruiting
Sponsor
University of California, San Francisco

Study Contact

Patricia Murphy, RN
(415) 476-2700
Patricia.Murphy@ucsf.edu

Detailed Description

PRIMARY OBJECTIVE: I. To determine the difference in survivor/caregiver knowledge and understanding of diagnosis, treatment information, and follow-up needs using the survivorship app. SECONDARY OBJECTIVE: I. To validate the usability and effectiveness of the survivorship mobile application. OUTLINE: Participants are seen in the survivorship clinic and receive education about potential late effects and the survivorship application on study. Participants then use the survivorship app for 4 months on study.

Notice

Study information shown on this site is derived from ClinicalTrials.gov (a public registry operated by the National Institutes of Health). The listing of studies provided is not certain to be all studies for which you might be eligible. Furthermore, study eligibility requirements can be difficult to understand and may change over time, so it is wise to speak with your medical care provider and individual research study teams when making decisions related to participation.