Dysautonomia International

A Registry for People With Lung Cancer

Participants will complete questionnaires before surgery, between 2 to 4 weeks after surgery, and 6 months after surgery.

Age ≥18 years - Clinical Stage I with suspected NSCLC, classified preoperatively based on the AJCC TNM staging manual, 9th edition o Note: Tissue diagnosis of NSCLC is not required before enrollment. A pathologic diagnosis of NSCLC may be confirmed preoperatively with biopsy, intraoperatively with frozen section, or postoperatively on final pathology

Actively receiving lung cancer treatment or a history of lung cancer in the previous 5 years - History of chemotherapy or radiation therapy for a previous lung cancer - Synchronous secondary cancer in the lung or elsewhere in the body at the time of surgery - Carcinoid tumors - History of other malignancies within the past 3 years, with the exception of non-melanoma skin cancer, superficial bladder cancer, and carcinoma in situ of the cervix - Actively receiving treatment for other malignancies - Cases of lobectomy in conjunction with segmentectomy from another lobe and ≥2 segmentectomies from different lobes either en bloc or separate will be excluded from the primary analysis. - Multi-segmental resection from the same lobe is not a criterion for exclusion.

Arm	Description	Assigned Intervention
Participants with Lung Cancer	Participants undergoing planned pulmonary segmentectomy for primary lung cancer	Other: Patient-Reported Outcomes Measurement Information System Participants-reported outcomes will be collected using the Patient-Reported Outcomes Measurement Information System (PROMIS). PROMIS is a web-based platform developed by the National Institutes of Health. Scoring is standardized on a scale from 0 to 100, with a population mean of 50 and standard deviation of 10 units. High scores mean more of the concept being measured. This study will use PROMIS surveys assessing three domains: physical function (PROMIS bank version 2.0), pain interference (PROMIS bank version 1.1), and dyspnea severity (PROMIS bank version 1.0) Other names: PROMIS

University of Arizona (Data Collection Only)
Tucson, Arizona 85704

Contact:
Praveen Sridhar, MD
520-694-2873
psridhar@arizona.edu

University of California San Diego (Data collection)
San Diego, California 92103

Contact:
Joshua Boys, MD
858-657-7777

Rush University Medical Center (Data collection only)
Chicago, Illinois 606012

Contact:
Christopher Seder, MD
312-738-3732

Endeavor Health
Evanston, Illinois 60201

Contact:
Seth Krantz, MD
847-570-2868

University of Michigan (Data Collection Only)
Ann Arbor, Michigan 48109

Contact:
Jules Lin, MD
734-936-8857

Memorial Sloan Kettering Basking Ridge (Limited Protocol Activities)
Basking Ridge, New Jersey 07920