Purpose

The purpose of this Expanded Access Program is to provide SPG302 to ALS patients who are not eligible to enroll in an ALS clinical trial. This Expanded Access Program will assess safety and tolerability, and clinical efficacy of SPG302.

Condition

Eligibility

Eligible Ages
Between 18 Years and 80 Years
Eligible Sex
All
Accepts Healthy Volunteers
No

Inclusion Criteria

  • ALS diagnosis - Age 18 -80 years at time of signing informed consent form - Ineligible for other interventional ALS clinical research participation - Vital Capacity less than 50% of predicted capacity for age, height, and sex - If currently taking standard of care treatment for ALS, must be on stable dose for at least 30 days prior to taking SPG302. - Life expectancy of at least 6 months, according to Investigator's judgement

Exclusion Criteria

  • Clinically significant and/or unstable medical condition (other than ALS) that would pose a risk to the patient - Known ongoing or clinically uncontrolled cardiac disease - Clinically significant liver disease - Clinical significant cognitive impairment or neurological disorder, as determined by Investigator judgement - Concomitant use of another investigational medical product for treatment of ALS - Unable to reliably and regularly swallow whole oral medications on a daily basis

Study Design

Phase
Study Type
Expanded Access

Recruiting Locations

University of Alabama Birmingham
Birmingham 4049979, Alabama 4829764 35233
Contact:
Melanie Benge
Melaniebenge@uabmc.edu

Mayo Scottsdale
Scottsdale 5313457, Arizona 5551752 85259

Cedar-Sinai Medical Center
Los Angeles 5368361, California 5332921 90048

California Pacific Medical Center
San Francisco 5391959, California 5332921 94109
Contact:
Daniela Sanchez
daniela.sanchez@sutterhealth.org

Nova Southeastern University
Davie 4152820, Florida 4155751 33314

Synapticure
Chicago 4887398, Illinois 4896861 60640
Contact:
Sarah Bohlman
research-studies@synapticure.com

Massachusetts General Hospital
Boston 4930956, Massachusetts 6254926 02114
Contact:
Grace Addy
gaddy@mgh.harvard.edu

Dartmouth-Hitchcock Medical Center
Lebanon 5088597, New Hampshire 5090174 03756

Atlantic Health
Summit 5105127, New Jersey 5101760 07901
Contact:
Jillian Anderson, MD
Research@atlantichealth.org

Columbia University Medical Center
New York 5128581, New York 5128638 10032

Thomas Jefferson University
Philadelphia 4560349, Pennsylvania 6254927 19107

VCU ALS Research Group
Henrico 4763729, Virginia 6254928 23233

More Details

Status
Available
Sponsor
Spinogenix

Study Contact

Project Lead
1 (661) 862-7122
als302eap@cbcc.global

Detailed Description

This is a multi-site, intermediate-size patient population expanded access protocol developed to provide compassionate use access to SPG302 to adult patients with ALS who have progressed following available standard of care.

Notice

Study information shown on this site is derived from ClinicalTrials.gov (a public registry operated by the National Institutes of Health). The listing of studies provided is not certain to be all studies for which you might be eligible. Furthermore, study eligibility requirements can be difficult to understand and may change over time, so it is wise to speak with your medical care provider and individual research study teams when making decisions related to participation.