Comprehensive Care for AYA: Needs Assessment Survey
Purpose
The goal of this observational study is to assess gaps in education about exercise, sexual health, fertility, survivorship, financial issues, interpersonal relationships, and clinical trial participation among adolescents and young adults with cancer. Participants will be asked to complete a series of questionnaires.
Conditions
- Cancer
- Young Adult Cancer
- Adolescent Cancer
Eligibility
- Eligible Ages
- Over 15 Years
- Eligible Sex
- All
- Accepts Healthy Volunteers
- No
Inclusion Criteria
- Individuals diagnosed with cancer between the ages of 15-39 per self-report. Participants may be enrolled at any age provided diagnosis was between ages 15-39. - Individuals who have received or are receiving cancer-directed treatment (chemotherapy, immunotherapy, surgery and/or radiation) at one of the participating centers per self-report.
Exclusion Criteria
- Severe emotional distress or anxiety that would limit compliance with study requirements per self-report.
Study Design
- Phase
- Study Type
- Observational
- Observational Model
- Other
- Time Perspective
- Cross-Sectional
Arm Groups
| Arm | Description | Assigned Intervention |
|---|---|---|
| Adolescents and Young Adults with cancer | Participants diagnosed with cancer between the ages of 15-39 who have received or are receiving cancer-directed treatment at one of the participating centers per self-report. |
|
Recruiting Locations
Charlotte, North Carolina 28204
Winston-Salem, North Carolina 27157
More Details
- Status
- Recruiting
- Sponsor
- Wake Forest University Health Sciences
Detailed Description
This descriptive study aims to assess current needs of adolescents and young adults with cancer. Participants who were diagnosed with cancer between the ages of of 15-39 will be asked to complete questionnaires to provide information on their cancer treatments and follow-up care, fertility preservation, clinical trial participation, emotional health and interpersonal relationships, financial burden, mental health and additional general information (health related, sexual orientation, perceived needs for support, resources, programs and activities).